AFPA

Special Committee for rare diseases


A special committee has been suggested by the High Court of Delhi. The committee will look after finding timely solutions and ways to treat and provide therapy options to patients going through rare diseases.

Objective of the verdict
The objective of the committee is to pave ways to gather crowd funding to treat children with rare diseases with immediate effects.
Why the HC has taken the decision?
There are numerous petitions filed by patients suffering from rare diseases. Patients demand uninterrupted and free treatment from the government owing to the exorbitant cost of therapies.
What is a rare disease?
The disease that affects a very small population is said to be a rare disease.

Examples of rare disease
Haemophilia, Thalassemia, Sickle-Cell Anemia, Pompe Disease, etc.
Following RARE diseases are prevalent in Delhi as of now:
1. Duchenne Muscular Dystrophy (DMD)
2. Hunter’s Syndrome
DMD: It is a condition in which muscles degenerate and victims get weak.
Hunter’s Syndrome: It is a rare hereditary disease that mostly affects males of young age. The body of the victim cannot break down sugar that builds bones, skin, tendons, and other tissues.

 

 

 

 

China plans to construct dams on Brahmaputra

 

Yarlung-Zangbo (known as the Brahmaputra in India) flows into India in the North-East region from Tibet (China). The river is of great importance and lakhs of people of the state of Assam, Arunachal Pradesh, Meghalaya, Sikkim, Nagaland, and West Bengal depend on the river for their bread and butter. Also, several indigenous communities are supported by the Brahmaputra river system. In its new and latest 5-year plan (2021-25) China disclosed a set of plans to build a dam on the river.
What is India’s concern?
1. Unlike Indus Water Treaty between India and Pakistan, there is no known water treaty exists between India and China.
2. Also, there is no forum or protocol exists between both nations to share the hydrological data.
3. The dam-building helps China to assert a claim over Arunachal Pradesh (widely known as South Tibet in China).
4. Large dams can reduce the river flow into India.
5. The move is suspected as China has intended to northward re-routing of Brahmaputra River as per its convenience and need. In other words, playing with nature.
6. Diversion of the river’s course may lead to either floods or reduced water flow in the North-Eastern region.

Maitri Setu Bridge

 

The Maitri Setu Bridge has been constructed and inaugurated on the India and Bangladesh Border.
The Bridge is constructed on the Feni River and connects the state of Tripura and Bangladesh.
The Rs 133 Crore worth bridge construction project was completed by the National Highways and Infrastructure Development Corporation Ltd.
The 1900 meter bridge connects Sabroom (India) and Ramgarh (Bangladesh).

About Bangladesh
Prime Minister – Sheikh Hasina
Capital – Dhaka
Currency – Taka

Note
• West Bengal shares the largest boundary with Bangladesh.
• Meghalaya shares a boundary with Assam on one side and with Bangladesh on the other side.
• Bangladesh shares the largest boundary among the other India neighboring countries.

 




MT Swarna Krishna becomes the first vessel sailed by all women officers


To acknowledge the efforts of women in the male-dominated maritime sector, Union Minister of the Ministry of Ports, Shipping and Waterways of Shipping Mansukh Mandaviya flagged off an all-women crew onboard vessel MT Swarna Krishna the ship operates under the Shipping Corporation of India (SCI).
The Shipping Corporation of India is celebrating its Diamond Jubilee. The initiative was taken in an attempt to commemorate the event and to celebrate International Women’s Day 2021. This is the maiden occasion in the global maritime history that a ship is being sailed by all women officers onboard.
International Women’s Day 2021
The was celebrated on 8th March with a theme decided by UN as follows:
“Women in leadership: Achieving an equal future in a Covid-19 world”.
About Shipping Corporation of India
– It was established on 2nd October 1961 by the joining Eastern Shipping Corporation and Western Shipping Corporation.
– It is a Government-run Indian Public Sector Enterprise.
– It operates and functions vessels that voyage through both national and international water
– Headquarters: Mumbai.
– It is Navratna Company. The prestigious status was awarded the by Indian Government in 2008.
Disinvestment: Back in 2019 the Union Cabinet had approved for strategic disinvestment of the Government of India’s share with the transfer of management control to a strategic buyer. Presently, the Shipping Corporation of India (SCI) possesses 63.75% of GoI’s stake in it.

Switzerland banned public face covering

 

The people of Switzerland choose to ban face coverings including Burqa or Niqab in public with a slight majority. In a recent referendum, 51% of Swish voted in favor of the ban in 50.02% turn out.
People are given permission to cover their faces in the following case/place:
1. Places of Worship
2. Religious or Sacred Sites
3. During Local Customs (Carnivals)
4. Due to Health Reasons
5. Due to Safety Reasons
Switzerland is not the first country to do so. Earlier France has vanned Burqas and Niqabs in public places in 2011 and registered as the first European country to do so.

Following practices of ‘Pardah’ have been exercised by the Muslim Women:
1. Burqa
2. Hijab
3. Niqab
4. Chador
5. Shyla
6. Al-Amira
7. Khima

 

 

 

10 million Child Marriages by 2030 due to COVID-19: UNICEF

 

‘United nations International Children’s Emergency Fund’ UNICEF has released a report titled ‘COVID-19 A threat to progress against Child Marriage’. The report’s key findings include the survey that around 10 million children may fall into the trap the child marriage by 2030 as a result of the COVID-19 PANDEMIC.